Thursday 16th September – The Rights for Residents Protest to Downing Street

Today, Robert and I joined other members of Rights for Residents and members of the public to take our Protest and petition to Downing Street. It was an emotional day with many people who had already lost their loved ones with others still fighting for access. The majority were wearing the blue T shirts or sweat shirts with the Rights for Residents logo presenting a united front. I joined Di, Jen, Kate and other prominent members to deliver the petition along with Ruthie Henshall and Liz Kendall ( MP). We had gained over 267 000 signatures but sadly were not allowed to present it to Number 10 but had to be content to hand it over to a policeman at the gates of Downing Street.

it was a remarkable day and we spent three hours chatting and chanting and speaking to the press and interested members of the public. The high light for me was meeting Julia Jones from John’s campaign as well as Nicci French who turned up to give support.

The photos speak for themselves.

Let’s hope that those who have the power to change these draconian and cruel guidelines do actually take notice and listen!

Friday 20th August – 2 weeks on

It is difficult to believe that it is already 2 weeks since Mum died. Robert and I drove back to the Care Home on the Saturday after she died to clear her room. I couldn’t believe how many clothes she had! One of the staff had very kindly emptied all her drawers and her wardrobe and put them all onto the bed. Sadly, for me, they also returned three bottles of whisky and 4 bottles of port. I asked why Mum had not been given them to drink and she replied ‘ she kept refusing.’ I do find this hard to believe as every time I skyped her she told me she wanted a glass of whisky and one or two of her carers had already brought one up for her.

Unfortunately, the same member of staff who was there to help us was also the same lady who reported me to the Manager and subsequently the police when I had my ‘break down’ in the car park and was also the same lady who reported me for kissing Mum at the end of a distressing visit! I tried hard not to say anything but finally I let her know just how hard the last 18 months had been for me. I told her that I thought the home lacked compassion and empathy for relatives and that they had no idea how their actions impacted on the emotional toll of both the residents and their relatives. She listened carefully whilst I spoke quietly and considerately. As we left she gave me a hug and told me how sorry she was. She also offered to take all of Mum’s clothes to the local charity bank which was on her way home. This was a very kind offer which we accepted as we could not have fitted them in the car and I did not wish to return to Mum’s home of 7 1/2 years ever again.

Interestingly, I have received no communication from the Home since – not even a message of condolence – I think that about says it all.

The following day, I packed up one of the teddy bear blankets I had had made and posted it to one of the young carers to her home address as promised. I do not know if she ever received it.

My sister who has POA and is the executor of Mum’s estate has arranged a closed cremation through the family funeral directors. I rang them to learn that the cremation which will take place on the 24th August, has been handed over to a firm called ‘ Pure Cremations’ who specialise in closed cremations. I then learned that Mum could be cremated ‘any where’ in the country! I was quite dismayed to hear this as I had presumed she would be cremated in Worcestershire. I spoke to the lady at Pure Cremations who told me that she was not allowed to tell me the place of cremation as it was in the hands of a third party and that I would need to employ a solicitor to find out! I conveyed this information to my sister who was also unaware that this was going to happen. I have tried to change the arrangements but sadly this would mean at least another 2-3 weeks wait. The lady at the funeral directors seems convinced that Mum will be cremated in Andover in Hampshire and that her ashes will then be returned to them.

I have consoled myself with the fact that Mum, who has not left the Care Home for at least 2-3 years now will have a trip down to Hampshire for her final journey. I will then collect the ashes and arrange to scatter them with Dad’s at Worcester later on.

Last weekend we headed up to Cheshire to Robert’s Mum’s delayed funeral service. She died in November and had had a closed cremation at the time. Robert and his brother had done an amazing job and I know she would have been very proud. The service was followed by a small reception in a hotel which was lovely as her old school friends all arrived for their annual get together! The family then drove up to Richmond and we all stayed overnight in a lovely hotel where she had had her wedding reception and in the morning scattered her ashes in the river Swale which had been her wish.

I will commemorate Mum with friends at Kilworth House on Tuesday, the date of her cremation. We are going to a show entitled ‘The Magic of the Musicals’ – they will be singing many of her favourite songs including those from South Pacific and My Fair Lady.

RIP Mum.

Friday 5th August – RIP Mum

My Mum passed away peacefully yesterday afternoon at 10 minutes to 4 in the afternoon. I had stayed by her side all night sitting in the chair next to her listening to her breathing. I timed each cycle of breathing – 25 seconds of deep breaths followed by 35 seconds of apnoea. She woke at 11 00 pm and was very unsettled and distressed. I called for help and met Harry for the first time – he really could not have been lovelier. He came to see Mum and tried to talk to her and decided to check to see if her pad was wet. It was. He then called for another carer and together they gently changed her pad and repositioned her up the bed. She settled very quickly after this and slept for another 3 hours. She woke again very distressed and crying out. I tried to placate and comfort her but couldn’t and decided to call Harry again. By now she was unable to take anything orally so he decided to call the district nurse to see if she could start some end of life drugs. Mum remained distressed and agitated for about 30 minutes but then went back to sleep. The nurse arrived 2 hours later and without even examining Mum announced that she could not start any medication as Mum was asleep and it would be unethical!! Sadly 30 minutes later, Mum woke again very distressed and in obvious discomfort. Harry came back and we tried to give her some fluids with paracetamol but she could not swallow. She eventually fell back to sleep. During the night my sister in Tasmania e mailed me and we managed to message each other. This was such a special time as she was able to see Mum in her last few hours and when Mum woke at around 6 00am she was able to talk to her. Mum became quite agitated again and we both managed to chat to her and comfort her until she fell asleep at 7 00am.

I was left alone with Mum in the morning but decided to ask if I could speak to a senior with regards to pain relief. A Senior, I had not met before arrived and spoke to me as if I was a complete idiot! She told me in no uncertain terms that she could only give paracetamol and if Mum ‘refused it, it was her fault!’ I actually could not believe what I was hearing! I pressed on and asked if she could contact the GP to arrange end of life meds. She replied that the district nurses would be in during the afternoon. I asked if she could contact the GP again and she replied ‘do it yourself!’ I explained that I hadn’t got the number and she said that she would give it to me. She then asked me very sternly if Mum had had mouth care this morning and I explained that I had been cleaning Mum’s mouth with cotton wool and water every 30 minutes when she allowed me to. She then looked at the glass of fluids and paracetamol and asked me ‘ how long has that been there?’ I told her since about 4 30 but that Mum couldn’t swallow. She picked up the glass and stormed out of the room returning a few minutes later with a piece of card with the number of the surgery on. By now I was in floods of tears but she took no notice and walked out of the room! I how no idea at all how this person could have been employed as a carer and hope and pray that she has not been directly involved with Mum’s care. I tried to ring the surgery but found I had no signal on my mobile phone so I had to ring for a carer again. One of the young carers arrived and I told her what had happened. She was very kind and advised me that all I could do was to ring the call button immediately if Mum became distressed again so that it could be witnessed! She then offered me some coffee and asked if I wanted anything to eat.

After phone calls to friends and Robert I eventually managed to Skype the surgery and spoke to the most wonderful receptionist in the world who assured me that a GP would get back to me. When I told her I had no signal she explained that he would call Mill House and ask to be put through to me. She was better than her word because about 1 hour later the locum GP and the district nurse arrived together. The very unpleasant carer accompanied him and listened whilst I explained to him that I was a retired A&E consultant and told him all about Mum’s condition and the distress she had been in. He kindly agreed to prescribe a fentanyl patch. Sadly, Mum had deteriorated quite rapidly and we could both see that this would most likely not be required but at least it was on offer and would be ready by 4 00pm.

After this, Mum slept but her breathing became more shallow and she seemed really settled. I sat with her and played Frank Sinatra and Jim Reeves Christmas albums. It was obvious to me that she was now within her last few hours but a carer was still sent up with her lunch and another with a glass of complan!

One of Mum’s carers popped in and asked me if Mum had liked tennis previously as she had been watching Wimbledon with her. I explained that Mum had spent every Wimbledon glued to the TV when we were little. She told me that Mum had done ‘this’ so many times before that she still might wake up yet!

Mum slept soundly all day and her breathing became less pronounced. At around 15 40 she started gurgling and I noticed saliva coming out of her mouth. I held her hand whilst she took her last breaths. As she did so the two senior carers arrived with the Fentanyl patch – they seemed surprised when I told them she was just about to die and quickly left the room to give me the last few minutes alone with her. I quickly messaged Jude in Tasmania who had just woken up and was able to spend the last few seconds with her as well. I was so pleased that I was with her at the end and able to spend her last 36 hours with her. Three of the young carers came in and gave me big hugs but I was not visited by any of the seniors or the manager of the home which has been my Mum’s home for over 7 years.

I sat in Mum’s room for a while and gathered together a few possessions I wanted to remember her by. I do not know whether or not my elder sister will want to clear the room or if this will be left up to me to do. The young carers insisted there would be no hurry and that I could return any time to do this. They phoned Mum’s chosen funeral director and started to prepare her for her last journey. I chose a night dress my sister Jude had bought her as I am not sure the Winnie the Pooh night shirt I had given her was appropriate! I declined to stay to see the funeral director but waited until the district nurse attended to certify the death.

It was a privilege to spend Mum’s last few hours with her but oh how much I would have wanted to spend so much more quality time with her during the 13 months I was excluded from her life. The way I have been treated by the Care Home Manager has been absolutely appalling – many months ago she wrote to me in an email to say that I would only be allowed to see Mum when it was ‘deemed that she was dying’. Sadly, she kept her word.

My poor Mum is now finally at rest. She has born this devastating illness with such courage and fortitude. The draconian and cruel guidelines drawn up by this government and implemented by Care Homes must be challenged and never ever be allowed to happen again. How on earth can anyone believe that over 25 carers can go in to the home to work and sit by your mother when you cannot? I hope and pray that some day someone has to pay for the devastating effect that this has had on both residents and families.

Wednesday 4th August – Mum’s final journey

I have finally been given full access to my Mum and been told I can visit when I want to and stay as long as I want. Yesterday I sat with her from 11 00am to 6 00pm. She was mainly semi conscious and woke occasionally when she was quite distressed. She was unable to drink or eat anything other than a small spoonful of thickened juice. She does not seem to know who I am or that I am even sitting next to her. I played some of her favourite Frank Sinatra CDs and kept her lips and mouth moistened.

She had to be changed on three occassions and screamed throughout the process. I have asked if she could have some stronger pain relief as she does seem to be distressed and in pain at times.

Today, I rang at 7 30am to be told she was ‘fine’! I drove over, stopping at Sainsburys as she has run out of pants and also bought a mouth care freshner. I have been sitting with her now for about 6 hours. She is mainly settled but wakes occasionally to move her arms which causes her discomfort. She has not been awake enough to try any fluids and is now on her last journey. Her breathing is very variable with 30 second pauses every few minutes. I have played Frank Sinatra to her and watched South Pacific. I don’t think she knows I am her and is mainly semi comatose or asleep. I am keeping her lips and mouth moist. The GP was apparently contacted but he decided that any dose of morphine might hasten her death! I really have no idea who is teaching doctors these days. A small dose of morphine would aid any discomfort and help her to ease into her last sleep.

It all seems so ridiculous that I can finally sit with my Mum and look after her now that she is in the final days of her life. I have lost 18 months of quality time with her – much of which time she was able to sing and chat to me on Skype calls. I am still required to wear gloves , a plastic apron and a mask. Goodness only knows why anyone should now think this is required as I am not coming in to contact with anyone else other than staff who fleetingly pop in to change Mum and bring in drinks which she cannot swallow.

I have decided to stay with her now. I have some teddy bears to sew and an assortment of DVDs to watch and listen to. I hope that her last few days are as comfortable as possible and that part of her knows I am here to be with her. She is much less distressed today than she was yesterday. I am told she had a very comfortable night.

My heart goes out to everyone who has loved ones in care homes and are facing this final journey. Many people are still being denied access due to positive cases. It is all so sad when all residents and most visitors are now fully vaccinated. I think the big question has to be – who or what are we protecting them from?

I cannot praise Mum’s carers enough. They are all so lovely to her and very caring. At least I know now that she has been well looked after in her final 18 months of life.

Sunday 1st August- 4 hours!

We returned from our sailing holiday just after 12 00 yesterday lunch time. It had been a very mixed holiday – the ship and crew were wonderful but due to Covid restrictions we had not been able to leave the boat for the whole time – sadly, neither had the crew and some of them had been on board for nearly 3 months! We came away with e mail addresses of the two lovely couples we had met and spent every evening with. We have all promised to meet up for Sunday lunch one day.

I drove over to see Mum this morning determined to spend more time with her this time. She has been ‘deemed end of life’ by some of the carers and I was therefore somewhat surprised to find her awake and looking a little better than the last time I visited. She was not able to engage with me or make any attempt at conversation and it was pretty difficult to achieve eye contact. The senior on told me I could stay as long as I wanted to! She is such a lovely and told me she knew how she would feel if it was her Mum! I told her that I was aware that the governement guidelines allowed visiting at’ End of Life’ and that this could mean months and not just the last few days.

Poor Mum is in a very bad way. She now has pressure sores on both of her legs, cannot swallow food unless it is mushed up and all her drinks are now thickened. She cannot use either of her hands and is doubly incontinent.

During my stay with her she cried and sobbed intermittently and spoke a few incomprehensible words.

One of the carers came up with a plate of mushed up turkey , potatoes and vegetables which she allowed me to feed to Mum. I was surprised that she managed to eat about a third as I had been informed that she had been refusing all food. She actually stayed awake for most of my visit and eventually allowed me to clean and file the finger nails of her right hand. I am not sure she knew who I was or that I was actually there at all.

After 4 hours, a carer arrived with a drink and I pointed out that she needed changing. Mum was visibly very tired so I decided to leave and let her have some rest.

The Golden Horizon

It is very sad to see her deterioration and the realisation of the dreadful quality of her life. She has virtually no stimulation other than carers popping in to feed and change her. I feel very angry that the GP prescribed antibiotics last week – I honestly feel that had these not been prescribed that her suffering would not have been prolonged.

In the meantime, poor Elgar has not been very well and has had bouts of copious vomiting – he is still drinking and trying to eat so I am hoping it is just a bug he has picked up and nothing more serious.

The young folk of our country are still dragging their feet when it comes to being vaccinated – I do hope that if they actually realised the implications of them testing positive on their families, friends etc that they would be queueing up! One positive case from a carer and Care Homes are closed for a minimum of 14 days. I understand that we all have human rights but for those people living in Care Homes these have already been trampled on and spat out.

I would have loved to have spent some precious time with my Mum in the 13 months I was locked out. That time can never be given back to me and that door has now been closed.

I am determined to see her for more than my weekly allotted visit and will be contacting the CQC yet again if my requests are denied. Some residents are now allowed as many visitors as they like providing they can be accommodated safely.

Friday 30th July – Leaving Poole

Yesterday we ended up staying in Poole harbour as the weather forecast was far too severe for us to head back to Dover. The evening was actually very pleasant as we had a firework display next to the ship for the Poole festival.

Yesterday morning I woke up feeling very anxious and worried about Mum – I waited until about 10 00am to phone Mum’s care home only to be spoken to by a very gruff lady in the office who told me in no uncertain terms that I was not to phone before 11 00am! Robert was listening to the call and we were both stunned by the callousness of the response! I put the phone down and cried. I did phone back again after midday and was informed that Mum was very quiet and had not eaten or drunk anything and that she had been visited by the palliative care team. I arranged to Skype her at 6 00pm and asked if someone could be in her room with her. At 6 00pm I skyped Mum – the girl who answered was downstairs but did go up into the lift and into Mum’s room. Poor Mum looked dreadful! She could not speak as her mouth was so dry and did not appear to be able to see the screen or hear my voice. She was clearly very tired and it seemed cruel to try and keep her awake. I told her I loved her and would be seeing her in 2 days time. I asked if she had received either of the cards I had sent at the beginning of the week but the carer who was with her was unable to find them.

I rang again this morning at 7 30am and spoke to the night staff who told me she had had a settled night and was not requiring any sedation and seemed to be pain free.

My Mum is clearly now at End of Life. This may take days / weeks or even months. I am still only allowed booked visits which are supposed to be 30 minutes in duration although the last few have been extended if there is a particularly caring senior on. I have filled in yet another form on line to let the CQC know but am not very hopeful. I will try and negotiate longer and more frequent visits when I get back on dry land! The guidelines clearly state that there should be no restriction for EOL visits – I do not know whether Mum knows if I am there or not anymore – it is so sad that the door has now closed to the time when I could have spent quality time with her.

Tuesday 27th July – The Golden Horizon

Robert and I are currently on a much waited for cruise aboard The Golden Horizon , a large Clipper vessel sailing around the south coast of England. Sadly, due to Covid we are unable to leave the ship unless on a booked trip with our cruise ship ‘bubble’. Today we found ourselves imprisoned on the ship as we missed out on the walking trip around Falmouth as only 20 people were allowed. It is hard to make too much fuss as many of the crew have not been allowed to leave the ship at all for 3 months! Instead we have been enjoying the pilates and yoga classes, the daily quizzes and the wonderful piano player. The ship normally takes about 270 guests but currently there are only 79 with the crew numbering us 2:1. It is difficult to see how the company is going to ‘stay afloat.’

I have rung Mum’s care home and have gleaned from talking to the carers that she was quite unwell at the weekend following the start of the antibiotics and needed morphine and midazolam. Today I am informed that she seems much more settled and has been chatting and eating small amounts but remains very variable and has not required any further sedation. To add to her problems she now has a small pressure sore on her left lower leg which has been dressed by the district nurse. I reminded the carer I spoke to today that I have a booked visit for Sunday and asked if I would be able to stay with her longer than the prescribed 30 minutes. I was informed that it might be possible depending on which senior was on duty!!

I was unable to contact the gp who prescribed the antibiotics so she remains on them. It is really difficult to understand how a GP can prescribe ‘end of life’ drugs along with antibiotics! She clearly has no understanding of the condition my poor Mum is in and total disregard for her or her familie’s wishes.

Tomorrow we did have a trip booked to walk round Dartmouth but due to the weather conditions we have just been informed that we will no longer be docking at Dartmouth and the trip has been cancelled! C’est la vie!

Thursday 21st July – Quanity v quality?

It has been a very warm week with temperatures hitting 30 degrees. I turned up for my last booked vaccination shift which had not been cancelled only to find that it had!! This was after phoning yesterday to confirm the shift! This was my 7th shift in a row to be cancelled so I have finally decided to return back to retirement. Mum is deteriorating quite rapidly now so I feel I do need to keep my diary free. We are off on our much cancelled cruise on Saturday – I hope that she does not pass away whilst we are away.

I drove over today with the air conditioning on as the outside thermometer hit 31 degrees! I was met by my favourite carer who I spoke to last Sunday. She came in to Mum’s room and we both took our masks off. Mum was semi comatose but did manage to say that she knew it was me who was there before going back to sleep. I was informed that Mum’s condition had deteriorated quite markedly and that she was screaming and crying and trying scratch herself. They had decided that she most probably had a UTI as her urine was so dark. I was quite surprised and initially quite cross when she explained that the doctor had been contacted and prescribed antibiotics without seeing her. A discussion then followed as to Mum’s quality of life. I tried hard to explain that Mum would not want this and that I felt her behaviour was most likely to be due to underlying depression and frustration and that it would be much kinder to start end of life care than antibiotics. She had already given her one dose and Mum had found it very hard to swallow. I explained that I felt Mum should now be on a low dose opiate patch as she seemed so distressed and she finally agreed. I couldn’t smell a UTI so I am not convinced that this is the problem.

I sat with Mum for about an hour and a half just holding her hand and sometimes playing music to her and singing songs. She became intermittently distressed and sobbed but was mainly asleep. I am not sure if she was aware if I was there or not but she did squeeze my hand tightly on a number of occasions. My visit was ended when she had an episode of acute diarrhoea ( probably secondary to the antibiotics!). I pulled the bell and two carers popped up to change her.

I left feeling quite upset and annoyed that the GP had gone over the family’s wishes without any discussion or actual examination. Surely anyone who actually visited my Mum now could see that her quality of life is nil. I will try and call her tomorrow as I am told she will be doing her weekly visit.

On the way back I stopped off at Coughton Court to visit their beautiful gardens. They were slightly passed their best but the perenial borders were looking good.

Sunday July 18th – one rule for me , another for you!

So, Savid Javid visited a care home and was photographed without gloves or an apron talking to an elderly resident wearing a cloth mask, 3 days later he tested positive! He has mild symptoms and is now isolating at his home. Both Boris and Richi have been contacted via Track and Trace as they were in close contact with the health secretary. No mention has been made of the care home residents – have they all been put back into isolation??? It was announced this morning that both Boris and Richi would not be isolating as they are in a special test group who will only have to have daily tests unlike the rest of the country! The twittersphere went mad and 3 hours later the decision was reversed and they have both gone into isolation for 10 days!!

Robert has booked himself onto a vaccination shift at Corby today! He is looking forward to being treated with respect and using his skills to vaccinate the public.

I drove over to see Mum in beautiful sunshine and arrived in time for my 11 30 appointment. My favourite Romanian carer was in charge and she showed me up to Mum’s room. I had to wait for a few minutes as they were changing the bed. I sat outside her room and the carer asked me how I was. I am afraid I just burst into tears! How do you explain how you feel to the very people who are keeping you from spending quality time with your own mother. She was very sympathetic and when we got into Mum’s room she ordered me to take my mask off so that Mum could see my face!! She also helped me to trim Mum’s nails! Mum was initially very angry at the prospect but did settle down when I bribed her with chocolate buttons. Her left hand is now very clenched and one of the nails had started to pierce the skin which has developed a callous.

I was left with Mum for just under an hour. She has deteriorated quite markedly over the last few weeks and was unable to formulate any words let alone sentences. It is difficult to know if she can see very well as I tried to show her some photos on my laptop and she just couldn’t direct her eyes towards the screen. I sang a few of her favourite songs. She tried to sing a long with one or two of the lines but couldn’t formulate the words. She cried out and screamed on occassions which seemed to be more out of frustration than anything else as she tried to communicate with me. I played her some music – Connie Frances singing happy days and lonely nights which seemed to comfort her. The knock on the door came far too soon and I was ushered out by a young carer who was completely oblivious to my distress.

The whole country is supposed to open up tomorrow with no more legal restrictions – except for residents in Care Homes who are still at the mercy of the providers! Meanwhile, the virus is rampaging through the youngsters who are still defying the call from the rest of the public to come forward and have their vaccinations. We are informed that it would be against their human rights to be enforced to have vaccinations in order to attend public events – what happened to the rights of those living in Care Homes who are once threatened with isolation if a Covid positive person enters the home?

Wednesday July 14th – It’s a mad world

29 years ago today we said goodbye to Dad who passed away peacefully in his own bed with his family by his side. He drifted into his last sleep aided by a morphine pump 2 days after completing the Times crossword! He had had time to put all his affairs in order and say his last goodbyes – I recall a very drunken evening the Saturday before he died with my Aunt and Uncle – there was much laughter as they recalled old times. He was far too young at 65 and had so many plans for his long awaited retirement which he had taken 5 years previously giving him and Mum some time to do some travelling.

Poor Mum is now imprisoned in her Care Home and dependent on strangers for all of her needs. She lies for 24 hours a day in the same room and in the same position. There is no one to have long conversations with and recall her youth and past memories which have mainly now been lost to this devastating disease. Her food has to be mushed up and her drinks thickened. She cries out in pain when she is changed and moved.

We visited her yesterday – neither my card or letter posted last week had arrived in her room. The carer who showed us into her room asked if I wanted to give her a drink. She returned with another carer and they skillfully moved her up the bed and adjusted her position so that she was sitting up enough to swallow and communicate. Her mouth was very dry and she was finding it difficult to talk. She managed to drink the chocolate flavoured complan and was then able to talk. I am not sure that she knew who we were and conversation was difficult as she kept dozing off and losing concentration. I showed her some photos in a book I had made for my sister Jude – it was difficult for her to keep up any concentration but she appeared to recognise her Mum and Dad. I also showed her a lovely photo of my Dad when he was a young man which is in a frame in her room. ‘ I was engaged to him once!’ she exclaimed. Sadly she had no memories of being married to him for over 40 years!

Her nails were quite long and she looked a bit unkempt but she became quite angry when I suggested that she let me cut them! The carer told me that she has been refusing to let them cut them recently which will become a problem as her left hand is held tightly clenched. I did manage to open her hand and so far there has not been any damage but the nails are becoming too long.

Robert and I chatted to her, sang songs and played her music. She was mainly very sleepy and found it difficult to engage. Ocassionally she woke up and looked quite bright! I asked her if she could hear and understand what we we were saying; ‘I hear what I want to!’ she replied.

Robert and I were left alone with her for over 90 minutes! She was very tired by the time the knock on the door came and I think she was ready to see the back of us! I guess it has been the first time for over 16 months that anyone has been able to spend more than 30 minutes with her and try to entertain her. How sad to think that she probably now finds it difficult to communicate because she is not used to doing so.

We await the government guidance on Care Homes which has been sadly lacking from any news bulletins so far. Night clubs can re open without any limitations but so far Care Homes remain strictly under ‘lock and key’.

The government is forging ahead with it’s decision to lift all restrictions despite a massive spike in numbers of positive cases and a rise in deaths. All my shifts at the vaccinations centre have now been cancelled as the youngsters are not coming forward to be vaccinated. They seem oblivious to the effect they may have on the population as the numbers continue to escalate – why on earth doesn’t Boris legislate that they cannot go to pubs/ clubs / etc without being vaccinated? It appears he can only legislate against the elderly and disabled who have no voice.

With a reported 1 in 10 people with long Covid post infection and the numbers escalating who have not been vaccinated we are heading for a disaster.